Koslen was born at Mercy Medical Hospital at 7:14 am Friday, September 7th, 2007. He was perfect and much bigger that his older brother weighing in at 7 pounds and 1 ounces. He was a huge 18 and a quarter inches long. On Sunday while at a birthday party for Kolsen's cousin Zane, Lacie called in tears and told me to get back to the Hospital right away because some thing was wrong with Kolsen.
Kolsen was born with Hypo-plastic left heart syndrome. This is where the left side of his heart never developed. This is a condition that should have been seen during any ultra sound after 20 weeks. We had 3 and it was not seen on any of them. Had it been caught, the only thing that could have been done was Lacie would have delivered him at Rainbow Babies Hospital. They have the number 1 Heart team for babies in the world. Now that we know Kolsen made it through the first surgery it is easy for us to say we are glad it was not caught before he was born. Our 5 yeard old son Kaden was able to enjoy a very normal happy pregnancy. Had we known at 20 weeks, it would have been very hard to be excited knowing what he was going to have to go through.
While you are in the womb there is an opening between the 2 sides of your heart that allows the blood to flow through. Once you are born, the hole closes in normally 48 hours. Kolsen was 56 hours old when we found out what was going on, and was given a medication to keep the hole open. He was taken by a mobile intensive care unit to Rainbow Babies Hospital in Cleveland. They said he was not stable enough to fly by helicopter. Lacie was not allowed to be discharged until the next day so her parents went to the hospital with the baby.
Kolsen was 5 days old when he had heart surgery. They cut the main artery on the right side of his heart and attached it to the left side so the blood now has a way to get to his body and his lungs. He will have another surgery around 4-6 months (he is 5 months now) and another at around 2 years old.
As of today Kolsen has been in the hospital with pneumonia, RSV, and at the present time with staph infection that the doctors are having a hard time getting to go away. There is a chance he may be in the hospital until his next surgery.
With every thing going on it will be hard to update Kolsens page, but I will try.
